Dear All

Had my three month appointment yesterday following start of Humira. I knew the news would be bad because I feel very unwell. Looking at my blood tests and joints I am now worse than when I was first diagnosed. This is after 20 months of Methotrexate, Naproxen, Sulphasalazine (failed), Leflumonide (failed), Enbrel (failed) and now Humira (failed). They are going to have a conference meeting about me to see where I go from here. The biggest problem is I need to keep working as I am the only earner so they have to keep me going some how or other. I am now in limbo waiting for a phone call. All I have to exist on now is Methotrexate and lots of pain killers. Please ring phone

On the up side my appointment was at our new "Shropshire Rheumatology Clinic". They have come out of our local hospital and moved into a purpose built building just around the corner from where I work. Very impessive. Lots of access to facilities and I am pleased to report lots of NRAS leaflets all around reception.

Jackie
xx

Hi Jackie,

So sorry to hear of your problems just now, this must be a real concern for you being the only earner. There must be something out there to agree with you, can they not re try any of the failed meds. I really do hope you get something sorted out soon. Hopefully the new purpose built RA clinic will work wonders for you. Thinking about you take care Lorna x

hi Jackie,

so sorry to hear that so far nothing's working for you ... and here's me feeling down that so far my Methotrexate hasn't worked for me just over 4 months on, am in the process of upping the dose before they try anything else.

and you must be under stress with having to work, i know i wouldn't be capable now.

be interested to see what they suggest for you next,

take care and good luck.

Suzanne x

Hi Jackie

Hope you won t be in limbo and suffering much longer and that following the conference they will come up with the answer. It is good to hear the you have a lovely new clinic, and can be assured of the best care, it all helps.

Hope you hear very soon, look forward to hearing from you.

Julia x

Dear All

Thank you for your kind replies.

Julie - yes thankfully they did give me a depo injection so joints feeling a little easier today. Luckily I am working from home today so can rest much more than having to "run" around the office.

To all those just starting on medication - I am not a typical case on failing meds so do not despair as what I have failed on may well work wonders for you. It is just about finding the right thing for me. I always was awkward .

Take care

Jackie
xx

Hello Jackie

I am afraid I do not have any details about the drugs. However I am fingers crossing that
all will go well for you. You have had good posts.

Good luck Rose